In honor of Cami's 3rd birthday, we're celebrating the inchstones and progress she's made over the past year!

The worry and stress will never go away. But, I'm happy to report that one year later, the weight has lifted.

Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...

November is National Epilepsy Awareness Month. Of all we’ve faced, epilepsy has been (by far) the most complicated and worrisome.

Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow