In honor of Cami's 3rd birthday, we're celebrating the inchstones and progress she's made over the past year!

The worry and stress will never go away. But, I'm happy to report that one year later, the weight has lifted.

Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...

November is National Epilepsy Awareness Month. Of all we’ve faced, epilepsy has been (by far) the most complicated and worrisome.

Cami receives a GoBabyGo motorized car adapted to her special needs offering her more independent, age-appropriate mobility!

Before this all started, I didn't know physical therapy for a baby was a thing. Now, "How can I turn this into an exercise" consumes me.

Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow

Cami was diagnosed with Angelman Syndrome at 15-months, but I knew when I was pregnant that something wasn't right. Here's how...

One year ago, worries of missed milestones launched months of specialists and tests. Recently, we received a diagnosis we never saw coming.