I've stopped blogging (for now) and here's why!

In honor of Cami's 3rd birthday, we're celebrating the inchstones and progress she's made over the past year!

It's been several months since I last blogged and here's a big part of the reason... SURPRISE! WE HAD A BABY! But there's another reason...

A special thank you to Trust the Journey Project for sharing our story with a special focus on grief and finding meaning.

The worry and stress will never go away. But, I'm happy to report that one year later, the weight has lifted.

As COVID-19 expands across the globe, I’d be lying if I said I wasn’t worried...

Those who face rare diseases are nothing short of inspiring. These are people who don't take "firsts" for granted...

A look into how Cami's special needs diagnosis has changed Christmas: How we decorate, how we shop, and how we are still so grateful.

November is National Epilepsy Awareness Month. Of all we’ve faced, epilepsy has been (by far) the most complicated and worrisome.

Cami receives a GoBabyGo motorized car adapted to her special needs offering her more independent, age-appropriate mobility!

Before this all started, I didn't know physical therapy for a baby was a thing. Now, "How can I turn this into an exercise" consumes me.

My sweet girl, I know this year has been hard on you. You're a military child, a special needs sibling, and you're three. But know this...

“So, I didn’t understand the results of her genetic tests – what did the neurologist say?” Everything stopped. I glanced at the doctor...

Everyone's path to diagnosis is different, but for us it was an emotional roller coaster of hopeful theories debunked by harsh realities.

Exciting things are happening in Angelman Syndrome research! OV101 | CRISPR/Cas9 | Gene Therapy | #cureangelmannow

Cami was diagnosed with Angelman Syndrome at 15-months, but I knew when I was pregnant that something wasn't right. Here's how...

After much reflection, I've decided it's time to launch The CAMI Project. Here are my hopes for this blog and this community!

One year ago, worries of missed milestones launched months of specialists and tests. Recently, we received a diagnosis we never saw coming.