RAISING AWARENESS AND FUNDRAISING TO MAKE A DIFFERENCE FOR ALL EFFECTED BY ANGELMAN SYNDROME!
donate
Proceeds raised will support the Angelman Syndrome Foundation and the
Foundation for Angelman Syndrome Therapeutics, nonprofit organizations leading the way in research, education, family support, quality clinical care, and real hope for life-changing therapeutics and a cure for Angelman syndrome.
ABOUT US
Caroling for a Cure was started by Liz and Emily, two friends brought together by their children’s rare neurogenetic condition – Angelman syndrome (AS). AS is caused by the loss of function of the UBE3A gene on the maternal side of the 15th chromosome. It occurs in one in 15,000 live births and affects approximately 500,000 people worldwide. People living with AS face developmental delays, walking and balance disorders, sleep and gastrointestinal disorders, life-threatening seizures, and a complete lack of speech. Despite these symptoms, those with AS are often known for their happy personalities and will light up a room with their unforgettable smile and laugh. Caroling for a Cure was created to spread joy just as those with AS do every day and engage our local community and Cami and Griffin's siblings and friends in raising awareness and essential funds to support all those effected by Angelman syndrome.
​
Learn more about Liz and Cami on
Facebook and Instagram @TheCAMIProject.
​
Learn more about Emily and Griffin on Instagram @ItsOurWonderfulLife and TikTok @WhatILoveToDo.
I WANT TO DONATE!
